Last week I caught up with an old college friend- Amma. She reached out after reading my blog last week. I was knackered and my knees were sore but I wanted to make the effort to meet up and I’m glad I did as it was a pleasant end to the week! I was late which is totally unlike me (Southern Rail’s fault) but as I walked into the restaurant I could see Amma’s big cheesy grin ready to greet me. It didn’t feel like 8 years had passed since we had last seen each other. She had me in stitches right from the beginning to the end. In typical Amma style she told me she was a bit worried about seeing me after reading my blog. When I asked why, she replied that she thought I would look fragile and be limping. She gestured something close to Quasimodo which…Continue Reading
It’s crazy to think that three weeks of the year have already passed and time as always waits for no-one! Thank you for all your messages and responses to my last blog. Really great to know people are reading and caring about what I write. Last weekend was pretty action packed, myself and Emmanuel attended a party to celebrate our client DJ Melody Kane becoming a resident DJ for BBC 1Xtra. Huge congratulations to her, she’s a true grafter and deserves every success! Saturday was pretty much a wipeout as I was still recovering from my visit to the hospital last week. I told everyone I was tired as it was easier than describing the pain I was feeling. I didn’t want to worry them again. In the evening, probably foolishly I went to an awards ceremony in central London to celebrate Black British media creators. Maybe I should have…Continue Reading
Ironically, I wrote about setbacks last week and then had one on Tuesday morning out of the blue. The good thing was that I didn’t have an epileptic attack but instead had a severe wave of pain that attacked my joints. It left me unable to walk or find any comfortable position. Normally I am able to control the pain and manage it on a daily basis by taking pain relief medication or by resting. But none of the above were working on this day, I had to call an ambulance and was blue lighted to A&E. Pain is a trigger for my seizures and I really did not want to have a seizure. The only way they can try to reduce the pain is by giving me the higher doses of sub-cut or IV morphine that they can’t prescribe for me at home. It’s crazy how long I have…Continue Reading
Hope your first week of the new year has been a good one. Thank you for all your messages on my last blog post (click here if you missed it), they were very encouraging. But one of the questions stuck with me “How do you keep getting back up after each time you get knocked down?” I didn’t expect to receive that question on a Friday night in the middle of watching Star Wars. I kept thinking about how to reply to this message, throughout the film and even wrote several replies when I got home but didn’t think I could do it justice in a few lines. So I decided to write a blog post. After all the epileptic attacks, the daily chronic pain and aspects of my cognitive skills declining- how do I keep getting back up? One word that often resonates with me is RESILIENCE. The best…Continue Reading
It’s that time of the year when people start to set a list of New Year resolutions, excited that come January 1st their whole life will dramatically change. I used to do this until I realised I would strictly follow them in January and then they would gradually fizzle out. I was mainly unable to follow them as I always felt like I was depriving myself and once I had lapsed it was difficult to get back on track. I now set only a few targets for the year, targets that are much more manageable and realistic. These feed into my vision of being a better person. I remind myself of them daily, so they are not some abstract frightening concept I feel I can’t reach. I then review where I am every month. This allows me to measure the progress I am making towards my targets and the chance…Continue Reading